ON HOLIDAY WITH INFANTILE CEREBRAL PALSY

ON HOLIDAY WITH INFANTILE CEREBRAL PALSY

10 points to remember before you leave for the holidays

1. DIAGNOSIS: New life with a diagnosis of infantile cerebral palsy requires careful planning, especially when organizing a trip outside of the already known territory. Plan well in advance the trip in Italy or abroad and ask the neurologist/neuropsychiatrist of competence (or even your pediatrician to trust) a sheet on letterhead certifying the diagnosis and the degree of disability-the therapy in- Any risk factors or notes for health care professionals. It is advisable to have certification both in italiano In English, or in any other languages spoken in the country of destination. In case of a verified disability you can check here other useful information on accessibility (e.g. car passes or accessible holiday places: Http://handymap.altervista.org/tempo-libero/turismo-e-disabilita)  

2. EPILEPSY: If you are already in treatment with anti-epileptic medications remember that they are life-saving drugs and can therefore be transported by the patient and the caregiver without any limitation; If you need to always have liquid medications with you (antiepileptic syrups, supplements such as hemp oil or first-aid drugs such as micropam), take care of your doctor's prescription to be shown to any security checks. There are no contraindications to travel by plane for those who suffer from epilepsy, but remember to maintain the appropriate sleep-wake rhythms and to progressively adjust the drug therapy according to the time zone of destination: talk to your Neurologist before departure. Always bring a list of useful contacts and the necessary health documentation in case of emergency, it may be useful to have a hard copy always available and a link to an online folder that allows you to recover clinical cards Deepening.

3. Medications and vaccinations: When you travel, always carry with you a supply of habitual medications, to be kept in your carry-on baggage and any baggage on consignment. If you have to prolong your stay you can check in advance the opportunity to send you the necessary medications from family or friends, already leaving them the prescription of the doctor. Always carry an additional prescription with the active ingredient (in addition to the commercial name of the drug), which may be purchased in the country of destination. In the case of anti-epileptic drugs, you can check with the Italian epilepsy centers if your usual medication is present in the countries you will visit. Here a list of recommended generic medications for the holidays, in addition to the specific therapy in place: Http://www.ospedalebambinogesu.it/i-farmaci-da-portare-in-viaggio#.WYQMbNPrPUo. Check in advance also any necessary vaccinations in the country where you will stay and the side effects related to the taking of the therapy in progress (e.g. antimalarial prophylaxis may be contraindicated for some epileptic patients ): http://www.vaccinarsi.org/ Or at the hygiene office in your city.

4. CLOTHING: Tutors and gloves on holiday, yes or no? The material with which the main orthoses are made today, intended for children with cerebral palsy, allows their use even with warmer temperatures. Check with the technician of the Orthopaical workshop the presence of coatings in material that does not cause allergic reactions and the type of shoe most suitable for summer; And with the physiologist of confidence, the opportunity to use the holiday period for an interruption of the brace for the foot and the glove for the hand, so as to observe the path and the grip in the absence of corrections. A good strategy can be to alternate during the hot season the use of open shoes with tutors and training barefoot on different surfaces (lawn, sand, stones). Remember to always bring with you at least two pairs of shoes suitable to accommodate the guardians.

5. THERAPY: If, in addition to drug therapy, you are being treated with other therapies (physiotherapy, Osteopathy, cognitive, occupational), the holiday can be an opportunity to temporarily interrupt the treatments and devote themselves to fully living the experience of the trip. In case you need to maintain a continuity of treatment, check with your therapist any affiliated contacts at the destination location or have a list of maintenance activities that you can directly administer in Holiday (e.g. stretching exercises, psychomotricity, speech therapy, guided play).

6. CLIMATE: If you travel to a hot or tropical country, in addition to the most common precautions, remember that the abnormal heat can be a factor of stress and therefore risk for seizures: Check with your neurologist how to manage any risk factors Additional in your case. Temperature fluctuations can also have an effect on muscle spasticity, a very low temperature can increase muscle tone.

7. INSURANCE: Before leaving, check here the prevailing health care system in the country you will visit and the documents required for the assistance: Http://www.salute.gov.it/portale/temi/p2_6.jsp?lingua = italiano & id = 897 & area = assistance% 20sanitary & menu = Italians . Remember, however, that in Europe the health benefits are generally free, except for the payment of any ticket or other participation in the non-refundable expenditure. If you are travelling to countries with a prevalence of private health care, such as the United States of America and Canada, you conclude an insurance policy in advance covering all medical and health expenses on the road (in case of epilepsy also check that the policy covers Pre-existing diseases and any consequent damage to the epileptic crisis).

8. HOSPITALS: Before departure, check the local number for emergency calls, the prevailing type of health system (public or private), the mapping of first aid points/hospitals present on the way you have travelled. There are today many downloadable apps on your mobile phone that allow you to call local numbers directly for emergencies, this one recommended by the Ministry of Health: Https://play.google.com/store/apps/details?id=com.accenture.eessi&hl=it

9. LOCAL ASSOCIATIONS: It can always be useful to have a reference of patient or family associations even in the country of destination, as well as interesting to share life experiences beyond their own borders. These are the associations in the world that deal more frequently with problems related to juvenile stroke or hemiplegia: https:// FightTheStroke . org/Parent Resource/

10. POWER: Unless special conditions associated with PCI (e.g. reflux, dysphagia, constipation, nutritional deficiency or food intolerances) are not reported special precautions: Enjoy your holiday also discovering new flavors and always Attention to food cutting Http://www.manovredisostruzionepediatriche.com/manovre-salvavita/cibi-e-oggetti-pericolosi/941-online-il-nuovo-poster-taglio-degli-alimenti-in-sicurezza-per-bambini.html.

You can support the association by purchasing the T-shirts to take on holiday here:

Https://worthwearing.org/store/ FightTheStroke ? utm_campaign = fts & utm_source = FTS-Website & utm_medium = banner_ita & utm_content = Carousel

 

Milan, 5 August 2017