We are Anna's parents, 4, diagnosed with cerebral ischemia in utero only when the child was 10 months old. Outcome of ischemia was a left hemiparesis that resulted in a discrete motor damage to both the upper extremity (mainly to the hand) and the lower limb.
From the moment of diagnosis it was a frantic succession in search of what could be the most effective therapies/strategies to try to recover the motor deficit and it was not easy at all. We live in central Italy, away from the big cities and the most advanced hospital poles in treating children with such problems and then let's face it all... Who had ever heard about the fact that even children could have a stroke?
We were taken in charge by the local health center ASL with two weekly physiotherapy sessions but we understood that it would not be enough, we had to do more. There was a time when we groated in the dark, the hardest time surely.
Find on Facebook The association Fighthestroke, come in contact with many other families who were in our same situation, helped us in an incredible way both emotionally and practical. Finally we did not feel more of the aliens, there were others who were living what we lived, with a wealth of information and suggestions to swap each other and that served us to make huge strides.
We approached first level hospital centers in the pediatric stroke: at the Gaslini Institute in Genoa we did a day hospital in which they carried out a sampling of blood samples for the study of possible genetic causes while at the Institute Medea of Bosisio Parini – Province of Lecco – Anna was taken in charge for the purely rehabilitative field and in 2017 she had a 6 weeks intensive hospitalization of the CIMT protocol (Constraint Induced Movement Therapy) which gave significant results for the Recovery of the use of the hand.
Never ever would we have arrived at these centers without fighthestroke and the families that are part of it.
Anna has made great progress, the work has been constant for 3 years and it is certainly not easy to manage everything with another child and our respective jobs. Without the help of our parents I don't know how we would have done. Our winning card was to meet at the beginning of this adventure a psychotherapist who gave us the tools to manage everything on an emotional level, this I really feel to recommend it: If you feel overwhelmed, ask for help, do not Have remore.
The motto of FightTheStroke "Fight and smile" We do it our daily, sometimes with more difficulty, but we believe is the only answer to the thousand questions that we do every day... Always struggling, looking for how much more right and effective for Anna, but head on, with the smile and positivity that our fighter deserves more than anything else.
Lucia and Adriano – Gubbio (PG)