The blog of Fight The Stroke
The first video-shooting workshop with the micro-Steadycam was held on 17/3/2019 in Milan for #hemikids. Housed in the new urban centre of Viale Pasubio, in the Microsoft House showroom, 10 children and 30 adults participated, who enjoyed experimenting with the DJI Osmo pocket, a tiny steadycam that sits in the trousers pocket and can allow Even to those who have a more unstable use and with only one hand to carry out urban shots of great effect. One of the few free events for children during the Milan Digital Week....
Rehab makes me live. #difendiundiritto # FightTheStroke
There is a risk that thousands of people will remain excluded from the #riabilitazione.
#difendiundiritto # FightTheStroke With US @giuliagrillom5s #ministerodellasalute
' If I have experienced first-hand disability, am I brought to see her even in my equal? ' It was published on the study date 19/2/2019Body Representation in Children With Unilateral Cerebral Palsy', by Arturo Nuara , Pamela Papangelo, Pietro Avanzini and Maddalena Fabbri-Destro, on the prestigious scientific journal ' Frontiers in Psychology-cognition ', the world's most cited magazine on multidisciplinary psychology.
FightTheStroke Has been selected among 65 practices and 11 policies from around the world that help persons with disabilities on the Zero Project Award 2019, celebrating this year the topic of Independent Living and Political Participation. Project Mirrorable Indeed has been awarded as a unique platform that improves the Motor Function in Young People with Cerebral Palsy. Look at the Award ceremony held at United Nations Vienna Here on Zeroproject Facebook Page
Thanks to Cristina Gabetti and the heading ' Eye to the future ' to strip the news, episode of 23/2/2019, the results of the projects Mirrorable Online and Mirrorable Camp supported by Vodafone Foundation-OSO come to life in this service that has reached millions of families in Italy. One step further in research and disemmining, on the part of young children who survived the stroke and with a diagnosis of Infantile cerebral palsy.
Milan, 1 December 2018– Tedmed Live | Call4Brain It was confirmed to the Fifth Italian edition as a reference appointment in the dissemination and promotion of the great challenges of medicine, science, innovation. The 2018 edition, which took place this year for the first time in the prestigious seat of the Royal palace, thanks to the patronage of the municipality of Milan, has recorded as always Sold out, with the usual levels of active participation on the part of the public, confirming a formula that is consolidating and is increasingly able to foster the sharing of ideas, positions and personal experiences, scientific, medical, and innovation points of view
The event will feature an exclusive preview of the American Tedmed's talk series to be held in Palm Springs, California. In Milan we will be present during the day of November 30, 2018.
On the occasion of World Stroke Day and in collaboration with the International Alliance for Pediatric Stroke, we asked our community to answer these questions, to tell us what forces they have put in their field to get up and that Flavor now has the new life: ' How did you get up from such an important trauma as stroke? What is the new normality of life today? What has been useful, thinking of entering or returning to school for your children? What advice would you give to plan a new life interspersed with numerous therapy sessions? As parents, what have you done for yourself, to regain a personal well-being? In the shoes of a young man who had a stroke, what was useful to readapt in society after the stroke? '
Voice of the verb cure. Letters and notes scattered over important memories. Curated by Fabia Timaco, author of the thesis "Communicating Health through communities. The case of FightTheStroke "
Curated by Dr. Luigi Piccinini-Medical surgeon, specialist in physical medicine and Rehabilitation at Scientific Institute "E. Medea"-Bosisio Parini (LC)
The first part of the day will be dedicated to young developers who find out how to adapt the most popular video games also to the needs of players with special needs.
In the afternoon, you will be able to allow individual game enthusiasts and their families to try out controllers tailored to their needs in personalized sessions, where the expert programmer will make realtime changes to the most popular games , from football to science fiction... finally accessible to everyone.
Thanks to an expert team on Machine Learning within Microsoft, FightTheStroke He participated in the "Microsoft hackathon 2018" ranking in the second world place in the category "Hack for Good Executive Challenge". A super Thank you to the team that contributed to this new success, to improve the life and independence of young survivors of the stroke: Alessandro Bigi, Antonio Maggio, Elena Terenzi, Jessica Tibaldi, Matteo Pagani, Ricardo Wagner, Roberto D'Angelo and Ricardo Wagner.
Curated by Alessandra Coda. The phrase "practical taekwondo" Often the answer is "What is it?", because, despite the increasing number of practitioners of the sport, many still do not know. Well, let's clarify all doubts: the Taekwondo [태권도] is a Korean martial art that involves the use of techniques of football and fist in both traditional forms and in combat. This discipline has no limits neither of age nor of skill as it can be practiced by all.
On a June morning, Veronica He asked if we had a song to share, a song that represented the mood of a family that received an unexpected diagnosis for his son, a song ' That gives you the charge to go ahead '. Each has contributed, without any kind of comment or partiality, and a playlist has been released that we hope will be helpful to new families.
Milan, 6 June 2018 – will be held in Milan, from 20 to 29 August, the first Summer Camp Mirrorable: 10 days of activity for children from different regions of Italy, aged 5 to 13 years and diagnosed with unilateral infantile cerebral palsy/hemiplegia, who will be able to practise new bimanual sports, such as golf, tennis, volleyball, basketball or Dance, thanks to the imitative learning with your tutor and with the playmates. For them will be pure fun, for the family a further benefit given by the use of the summer break in activities aimed, with a strong attention also to the psycho-social wellbeing of young patients.
How did my son's stroke change my life?
To be or not to be, that is the question...
In Summary: My son's stroke has distorted my mother's way of being. First of all, I'm a mom plus mom: The Curse of our firstborn has put on me an irrepressable instinct to wind. We have three children now and I would continue, even if it were not that...
Suddenly we stopped. He was intent on looking at the wall that led to the sea. Or at least, so it seemed to me at that moment. Maybe he saw something interesting, which I had escaped. I didn't know it yet, but at that very moment our life was just dyed purple.
In 2017 we completed our first survey on the knowledge of stroke on a representative sample of the Italian population (source: Omnibus Doxa – Sample 1000 representative cases of the Italian population, December 2017), to which we have Asked: 'Do you think stroke is a disease that can affect even children who are still born, who are in the belly of mom?'. The results did not amaze us...
Milan, 25 May 2018– At 75 ° Open D ´ Italia, families will also be protagonists. The Family space in Soiano del Lago will be set up with various entertainments including the Superabili area, managed by Maestro Nicola Maestroni. In this area, Saturday, June 2 from 11.00 to 13.00 will be hosted children Dell ´ Association FightTheStroke , which protects young survivors all ´ stroke.
My life has changed: it would have changed anyway with the arrival of a child. Riky is now almost two years old and fills every space and every moment of my day. He's got a left hemiparesis. He has an emiparesis, not his emiparesis. He's a kid. He's a happy child. And that's what's important! ...
We are Anna's parents, 4, diagnosed with cerebral ischemia in utero only when the child was 10 months old. Outcome of ischemia was a left hemiparesis that resulted in a discrete motor damage to both the upper extremity (mainly to the hand) and the lower limb.
Riccardo was born with a smile. "Why don't you Cry?" "He smiles, he's just born but he's happy already!"
Here's what I remember of his birth, I remember his rosy face, plump and above all serene.
Maybe that's what I want to remember because in reality this feeling of peace, of extreme beauty lasted a moment and then I slipped away from my hands despite efforts to stop the memory of that beautiful perception of emotional perfection.
A chair in a waiting room. This is what I remember about the moment when, during the ultrasound of the eighth month, the doctor told us that "something was wrong". I remember the legs that were plotting and that chair, where I could not sit, waiting for the doctor to write the report and call us again in the study....
Today I want to share with you the story of my family. Before and after stroke. I am Brazilian and I moved to Italy in 2004 to study. Here I meet a Canadian boy who grows up in Florence called Carlo Woods. He's 13 years older than me and has 2 daughters since his first marriage. "Sunflower", 26 years old and "Pink", 24 years old. "Rose" has muscular atrophy.
We are the father and mother of Camilla, a girl who is now 4 years old. Our story and the story of Little Camilla begin at the end of a labor lasted 24 hours. At birth, Camilla is a baby girl like many others, nothing makes predict that from there to 5 hours our firstborn would be hit by a stroke.
The sense of loss that I felt when we received the diagnosis was immense and still peeps every now and then into me, even though it has been almost 5 years. The extent of what was communicated to us that day was a thunderbolt in the clear sky. The motor problems of our daughter Elena (EMI DX), who was 10 months at the time of diagnosis, we had noticed them for a long time; However, we would never have imagined the size of the damage that his brain had undergone at a time that is still not known accurately, including between the 28th week of pregnancy and the 28th day of Life.....
Our parents are acrosters, therapists, cooks, drivers, but they are mostly live parents, struggling and smiling every day and we like to celebrate them in May 2018, dedicated this year to life experiences after receiving the diagnosis of stroke, for the Own son.
Here you can find the contribution of Italian families to the Italian language campaign: https://en. FightTheStroke . org/Lifeafterstroke
I remember exactly the expression of the Doctor who first told us that Camilla had had a cerebral hemorrhage, then a loud noise, the desperate embrace with Alexios and the spaceship, also more commonly called "Thermocradle", which if the door Via. It had only been 28 days since his birth, days very different from how we imagined them, because we, in our hearts, we always knew that something was wrong, despite the assurances or accusations of being parents eager for doctors and TIN nurses where she was hospitalied for jaundice.....